I am the most inconsistent blogger on the planet. I think about it most days, but then I put all this pressure on myself. The post needs to be perfect and have pictures and be on topic blah, blah, blah.
Back when I started this blog I was stressed out of my brain, exhausted, I had two children under 2 and I really new nothing about Fragile X. So I called this blog My Fragile X Boy, thinking Connor’s condition was the problem and that, that’s what I needed to talk about.
Since then I’ve learnt so much more.
Now I know my daughter has it and that I’m a carrier who also has a whole heap of my own symptoms. And that’s terrifying. I don’t want to end up like my mum. She’s in a home, her brain is turning to mush day by day, her body is frail. I need to be a super mum. I need to be healthy and strong because my kids need me.
Fragile X, really does screw with your mind.